Neuropathy

[jayhawk]

Hello - I just found your discussion board this morning, while searching the internet, while waiting for my doctor's office to call me back. I was recently diagnosed with Inappropriate Sinus Tachycardia (IST) by an electrophysiologist. During the workup, he also mentioned that the IST could be related to dysautonomia, but "you don't have a lot of the symptoms yet." At the same time I have been going through the workup for a cardiac problem, I have been suffering with bursitis of the left hip and a "locked" sacroiliac joint. I was given an injection of cortisone 4 months ago, for the bursitis and it really hasn't helped. If I return to a normal level of activity, such as walking my dog for a mile, I am right back in pain. My family practitioner sent me to an orthopedist who basically told me to not do any repetitive motion, do water aerobics, get a massage, and gave me a prescription for Viodin. In despiration, I did something that I never thought I would do, I went to a chiropractor He is the one who actually found the sacroiliac problem. His "adjustments" would help as long as I didn't do any activity. I went back to the family doctor after 2 months of pain and frustration. He finally agreed to have me evaluated by a physical therapist last week. They have recommended physical therapy for 6-8 weeks.

The reason I am posting on your discussion board is because over the weekend, I could not sleep because of a horrible burning sensation in the left hip, where I have had the bursitis I took one of the Vicodins, which I hate to do because of constipation, and it barely took the edge off the burning in my hip. I had a bout with neuropathy 8 years ago when I had a 2nd neuroma surgery in my left foot. I had grown a "stump" neuroma because the podiatrist did not take enough of the nerve during the first surgery. I went to an orthopedic surgeon who specialized in feet. When I was slow to recover from the 2nd surgery (had a hard time putting weight on the foot) and then developed this burning pain in my foot, he put me on 10 mg of amitriptyline for 6 months. It did the trick for several years until I developed Restless Leg Syndrome in that leg. Then he upped it to 25 mg So, what I'm trying to say is that I've felt neuropathy in my foot before and the pain I am now having is very similar.

Does neuropathy ever develop after you have had a joint and bursa problem like this? I do not have diabetes and was physically active until four months ago. Is there a connection between people who have dysautonomia and neuropathy? I have a B. S. in Medical Technology and a MLS in Health Informatics. I have been searching for answers this morning and many of the sites that mention neuropathy also mention damage to the autonomic nervous system. Since I have just received a diagnosis of a form of malfunction of the autonomic nervous system (IST), does it follow that this new, burning pain could also be related to that malfunction. I have done a lot of reading about dysautonomia in the last few weeks and I see a common thread on their discussion boards, of doctors not believing the problems or pain they are experiencing. I'm trying to do some rapid self education so I know some questions to ask. Thanks, K