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Horrible neuropathic pain in my face...Hi, I am a 28 year old stay at home mom who was diagnosed with trigeminal sensory neuropathy about 7 months ago. When the symptoms first started I was uninsured and now our new insurance considers my condition pre existing. I have not been able to find a doctor that has been willing to help me with pain management. Obviously they have never experienced any type of nerve pain. I was trying to wait out the 6 months till my insurance will cover the numerous expensive tests that they want me to have, but the pain in just too unbearable. I finally had to take my pain into my own hands and started taking Vicodin that freinds and family were giving to me. This has been the only thing that gives me any relief. I have tried Neurontin, Lyrica and Elavil with no results. The last doctor I saw is going to put me on Tegretol, but only after I can afford the extensive blood tests that he wants me to have. I have no idea where to go from here. I don't want to continue taking pain pills illegally, but I have to be able to live and be a mom and a wife. This situation has made my life feel like a nightmare.
Does anyone have any suggestions or know of a good, caring, motivated neurologist in California?
Re: Horrible neuropathic pain in my face...Hello, this is a forum moderator responding. Although I don't have a direct answer to your question, HC's MDLocator may be used to help you find a qualified neurologist in a community near you:
http://www.neurologychannel.com/mdlocator/index.shtml/ Although MDLocator lists many neurologists, it does not include all. Thank you for participating in the forum, and I wish you the best in finding answers to your medical questions.
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stulchinsky