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Idiopathic Peripheral Neuropathy

Post a new topicby Hope75 on Fri Feb 20, 2009 10:34 am

I am in pain and tired of it. My peripheral neuropathy has no known cause after 3 neuros, one pain specialist and even a shrink. The only thing that remotely has helped has been comfy, breezy shoes and a combo of Pamelor (antidepressant and helps pain) and Tranxene (for sleep). I've tried Neurontin, but I don't think it helped. I do have to admit that it was not a large dosage, but it made me so sleepy at work, I couldn't take the larger doses. I had a small fibre nerve biopsy at Johns Hopkins. The results were reportedly "normal" but my nerve cells showed "excessive segmentation" and some other descriptive word (I don't recall exactly) that meant "fraying". My question is, if it is "normal", then why are there descriptions of excessive segmenting etc? I asked the neuro and she said that it was probably an "insult" to the nerve fibers in the past and they are healing. Okay. But, I'm in pain one day and the next day just some tingles and numbness. It seems to go in cycles, pain for about two months, then relief for a month or two. What the heck? I've had MRIs, lumbar punctures, blood work, EMGs, VEPs, etc etc etc. Does anyone have any suggestions? I have tried the vitamins and supplements too. I may not be real consistent with taking them, missing a day here or there. I always feel like it doesn't help and so I don't take it seriously. I've tried PT, chiropractic also. If anything, just knowing I am not alone is a big help. I don't wish it on anyone, though. :)
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Hope75
 
Posts: 12 | Joined: Fri Feb 20, 2009 9:02 am

Re: Idiopathic Peripheral Neuropathy

Post a new topicby daykat59 on Sat Feb 21, 2009 4:31 pm

My situation is like yours - medications have been chaged, and nothing seems to work. I was up to 2100 mg of Neurotin daily and told the doctor I wasn't even sure what it was for anymore since it didn't seem to have any effect. He has me trying 150 mg of Lyrica this month and I am to let him know what effect it has and whether or not to continue it. I was diagnosed 4 years ago after my right foot had (gone to sleep?) 6 months earlier. The doctors still look at me funny when I tell them it is the same sensation you get you say "my foot's asleep". Only mine has been that way since July 2004. Now my husband has someone pressuring him for me to get on the RELIV program - {because it can cure almost anything}. I still don't think anyone quite gets it when I tell them I don't like to drive anymore because the pressure of the gas and brake pedals can be painful.
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daykat59
 
Posts: 1 | Joined: Sat Feb 21, 2009 4:11 pm

Re: Idiopathic Peripheral Neuropathy

Post a new topicby Hope75 on Mon Feb 23, 2009 9:55 am

I understand, definitely. What is the RELIV program?
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Hope75
 
Posts: 12 | Joined: Fri Feb 20, 2009 9:02 am

Re: Idiopathic Peripheral Neuropathy

Post a new topicby diam-inc on Thu Feb 26, 2009 8:59 pm

Hi - You are being treated for neuropathy and I have to wonder if that is your problem. Tingling, numbness and pain are generally found in both feet starting at the toes and working its way back over time. You might want to check into nerve decompression surgery. It sounds like you would be a perfect candidate for it. Just google it and my first choice would probably be the Dr. in St. Louis. It largely depends on the nerve damage that you have as to whether it will work. The Dr. will know. Good luck.
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diam-inc
 
Posts: 11 | Joined: Thu Jan 22, 2009 5:31 pm

Re: Idiopathic Peripheral Neuropathy

Post a new topicby mainereliv on Sun Apr 05, 2009 8:14 pm

Hi Hope75,

I hope you don't mind my responding, but I've been involved with RELIV for almost 3 years now and I got involved with the business of helping people with this product because of the life-changing results that this product gave to my step-mother. I was living with her and my father at the time, because she had been diagnosed with MS (multiple sclerosis) and they needed my help around the house. I had never heard of Reliv before 3 years ago, but I found it because I owned a fitness center and I was looking for vitamin supplements to bring into my center. At the time every sales person that I spoke to recommended that I use their pills, but then I met a woman that had been involved with the Reliv company for 7 years and she explained that it was a powder that was mixed with a beverage and because it was in liquid form, that it would go into the bloodstream and start to rebuild cells within 15 to 20 minutes, 90 to 95% absorbed by the body (unlike pills, which were only absorbed about 20-25% and some times pills leave the body still intact).

Anyway, to make a very long story short, I ended up selling my fitness center within 3 months of getting involved with Reliv because I was helping so many more people. My step-mother brought the Reliv into her neurologist and got her approval. Before using Reliv she was taking a medication to get her through the day, muscle relaxers to prevent the spasms every night, and she was on a steroid drip every Friday that would give her flu-like symptoms for 3 days after. Plus the medication was causing her to gain a lot of weight. She was barely getting through her work days and wasn't making a full week of work over time. Needless to say, she had no quality of life, and we assumed that it was only a matter of time before she really had no life. And then I brought Reliv home to take myself and to research more before introducing it to my members. She wanted to try it also, and it's just nutrition so I knew it was safe -- and within 30 days she was a new person. Over the next 3 months she worked with her neurologist and ended up feeling better and better and better because of Reliv, to the point where she's off of all of those medications, including the weekly steroid drip. She looks great, and she's never felt better. Her neurologist was initially skeptical, but is a true believer now and when her patients ask her for alternatives to medications, she tells them to call my step-mother.

I can't tell you what it's like to be able to help someone that you love and give them their life back. Well, it didn't stop with my stepmother. Next, Reliv was able to help my mother with fibromyalgia to the point where she is 95% pain free after suffering for 40 years with chronic pain. My business partner's uncle had prostate cancer and his PSA levels dropped from almost 4.0 to .0036 while taking Reliv. Because the people that we loved were getting better, it was an easy decision to sell our fitness center in 2007. We've been sharing this amazing, powdered nutrition ever since and we've been able to offer hope and help so many people that you wouldn't believe it.

I would never hound you, but it sounds like you're looking for help because nothing else has worked. I absolutely remember my stepmom feeling that way. I can even remember the point where she couldn't feel her foot on the gas or the brake (similar to the other woman that posted) and we were petrified that she was going to die or kill someone else. But I can introduce you over the phone to so many people that have suffered with your symptoms and have been helped by Reliv that it will make your head spin. It sounds too good to be true, that nutrition can heal the body the way that Reliv does, but all that I can do is tell you what it's done for me, my family and many many other families.

Please email me and give me a chance to change your life, too. Reliv is 100% refundable. There's no risk, and I'm telling you that this is what you've been looking for. Let me introduce you over the phone to people that have had life-changing results with all forms of neuropathy and more. Not a brochure or a website, but real stories of people that were initially skeptical but felt that they were at a point where they would do anything to make tomorrow different from today.

My email address is: [moderator note: e-mail address has been removed]
Please feel free to call if you would prefer to do that: [moderator note: phone number has been removed].

Lisa
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mainereliv
 
Posts: 1 | Joined: Sun Apr 05, 2009 7:01 pm

Re: Idiopathic Peripheral Neuropathy

Post a new topicby patwhite101 on Thu Jun 25, 2009 3:10 am

I just wanted to respond to the "Reliv" comment.
You know the old saying...."If it sounds to good to be true........well need I say more?
Beware.....
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patwhite101
 
Posts: 23 | Joined: Sun Jun 21, 2009 10:07 pm

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