Neuropathy

[tinaanneb]

Hi Friends
I have suffered with this pain for over 7 years now and feel that I have it as controlled as possible, but I am always looking for new ideas. My pain is a bit different than most -- no tingling, no just sock and glove pain -- I have all over PAIN. Sure it started with my hands, and within a few months my feet - but at this point EVERYTHING hurts. As I sit here writing the fan blows the air on my arms and that is hyper-sensitive too. It hurts to comb my hair, it hurts to have my rings on, it most certainly hurts more in any type of shoe. (but actually have found some good shoes!)
I take the Lyrica 50mg three times a day - a narcotic three times a day and have started on the B complex vitamins as well as Alpha Lapoic Acid, Fish Oil and a good multi-vitamin. These vitamins are new for me, so I will give it a good try.
I get by most of the days, but some times it gets overwhelming. I live in the Phoenix area and with my husband decided to drive to San Diego this week (which is 7 hours away) after 2 hours in the car we pulled over and I just stood there crying -- I could not go another five hours with the pain the way I was feeling. As I sit the pressure on my nerves on my butt and legs just scream - so I am constantly moving -- in bed I feel like a rotisserie chicken all night long - without the covers touching me as best I can with a foot tent - and keeping my arms under the covers because of the fan again!
I do have it down to a science, but get overwhelmed with constantly expanding my list of things I can't do comfortably. I will have to fly - no more road trips.
So that is my life -- pain, pain and more pain. No numbness, no tingling, no just hands and feet - just pain, everywhere! Anybody out there like me --
Your friend in Arizona