Reflex Sympathetic Dystrophy (RSD)

[livingwith]

My first knee surgery was at the age 12 and my last was at the age 42 Dec.28th 2006 total knee replcement. I thought the pain would go away, how wrong I was after surgery was diagnosised with R.S.D and it has been hell ever since. It has been a year and now my doctor is talking implant for the pain. I will try anything at this point, If anyone has R.S.D in the knee please let me know your story. thanks Debbie
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[BStack]

Hello Debbie,

I'm so sorry to hear your story. I really feel for ya. I'm 43 years old and have had RSD in my left knee for 9 years now. I consider myself lucky because it hasn't spread and I've had periods of remission. I was diagnosed at 6 months (after being on crutches for 6 months!). I went through 7 lumbar blocks, intense pt, and a lot medications. It went away for 3 years but then came back. Now I am on alot of medications that help - neurotin, effexor, gabapentin and nortriptylne. I took prescription strength Ibuprophen for a long time too but decided it was going to seriously damage my liver. I get regular blood tests and see my pain management dr. I am able to work (desk job). My husband is very understanding. I still have hope of it going away. I have considered a stimulator a few times but am still holding off. Good luck and let me know if you have any questions. Take Care and do what you think is best for yourself!