Reflex Sympathetic Dystrophy (RSD)

[livingwith]

I had surgery on both feet two years ago and developed RSD in both feet following the surgery. I was diagnosed 3 months following the surgery and immediately started treatment. I started with pain block injections in my back which did not help. The pain was like what many of you have described, horrific, and I could not walk. I then started taking Lyrica and was sent to physical therapy I had a wonderful therapist who did manipulative therapy on my feet for a year. I had great difficulty ...Read the full article

[Pamela E]

I am so glad to read a success story. I have been looking high and low. I feel so bad for all of us who are suffering. I am told by my therapists that there are many success stories, but those of us who continue to suffer are more likely to tell our stories as we are stuck with the situation and haven't been able to "move on." I do also want to hear the stories of people who are still in the midst of this RSD mess. What tough situations people are dealing with.

I have had some improvement with time, but I am worried about taking the neurontin and I think it represses the ability to breathe deeply which I think could cause all kinds of long term problems. Plus it makes my brain mushy, could that contribute to dementia later in life? I don't want to look for trouble, but anybody in the 21st century who doesn't think about possible long term side effects of drugs after what we have seen with everything, from DES to Vioxx and Hormone replacement therapy, would be less than aware of reality.

I too have been a teacher for many years. Did all that overwork set me up for an overstressed response to injury? You got to wonder. Running to the bathroom in the 5 minute break between classes, grading papers till my hand felt like it would fall off. Now my right hand is the problem, and I am right handed. Here is hoping for relief for all RSD sufferers.

Pam