Reflex Sympathetic Dystrophy (RSD)

[livingwith]

My name is Amber. I am 15 years old and have RSD. I first got RSD when i was 2 years old. But I was finally diagnosed when i was 12. I have had a lot of compications with RSD But any doctors I have gone to have been unable to treat me. I have been given many “pain killers” along with certain siezure [seizure] medicine to help and leesen the pain. But no luck. Because of RSD I have failed a grade, and had many problems among my peers. I try to explain to them what is the matter, but ...Read the full article

[john1]

Hi Amber,
I am so sorry for your condition. If you have some good friends I would tell them to "google" RSD. Just those three letters will tell them a lot about what you are dealing with. My wife accidentally stabbed herself in the wrist last year. Now she has RSD in both legs and both arms. We have tried the Ketamine treatment in the US for a week and she was pain free for about a week after that. She is in severe pain and I am in the process of seeing if we can go to Mexico or Germany for the Ketamine Coma. I don't know if this is an option for you but you may want to check into it. My wife is 46 years old. I can't imagine how difficult your life has been especially when you didn't even know what was wrong for so many years. We will keep you in our prayers.
You can email me at [moderator note: e-mail address has been removed] if you want to.

[trinismom]

Hi Amber,
i feels so bad for you! i have had rsd since 1999 and i am always horrified that one of my children will become affected by it! It is the nastiest most incidious disease! i saw many doctors and... blah blah blah they all said the same things! (or nothing at all) but when it came down to it they really didnt know what to do for me. i feel so fortunate that i never allowed them to do anything too invasive to me. i did have one sympathetic nerve block... but it didnt really help very much. what i have learned is that it is important to be open minded and seek alternative therapies. the results are so much better than , for instance, only taking anti depressants and anti convulsants. (by the way, i want you to know that rsd and depression go hand in hand. you are not alone in that! it is normal!)
Please have your mom or dad contact me. I really want you to know about the treatments i have done that have helped and made a difference. my email is [moderator note: e-mail address has been removed]. i truly hope to hear from you. Kathy