Reflex Sympathetic Dystrophy (RSD)

[sammy157]

Hi Darlene,
I'm so glad you and Sam have so much in common. (Hi Sam) I am sorry to hear that the both of you have to use a chair to be Mobile, but Hey...why not!! I have a chair that brings me down my basement, and I don't know how I would be able to get my wash done, as that is where my washer & Dryer are!
Well just to up date you..I haven't been on in a few days, I went to the Dr. about my knee, and of course, not such great news! Here we go, MRI..Ortho..Poss. surgery. First they are going to inject my knee whit a cortisone shot just to hold me over, but the best is yet to come......
They couldn't do it that day, after bring me back from the prev. day, do to the fact that my Ins. wont cover more that two procedures in one month..ok..but now I have to wait till next month, but the DR. said I can't, and shouldn't wait. He advised me to go to the ER and all will be done at once....MRI, Shot..or keep me there and do the surgery!! He wanted me to go that same day (this was on the 20th). Well I did not have a driver with me, in case they just gave me a shot, and of course they would have Medicated me. So here I am, in so-so much Pain, and I have to make arrangements to go to the ER. This is just crazy!!!! My PM Dr. will only work with one Otho. Dr. who is very formulier with RSD (which is Great) as I was so stressed out about that, especially if I am in need of surgery. Well I just have to do it..I can't walk and all I am doing right now, is keeping my leg elevated. My Pain meds. just are not doing anything! The only relief is going to be if I go to the Hospital.
Well I hope you both have a low pain day today..the weather is quite nice, for a winter day today..I haven't heard what the weather is going to be, but right now I believe it might be in the low 30's..Yah..haha. I'll keep you posted, and have you tried rsdandyou yet?? The chat is a bit confusing, as no one is ever there,but it is open..so if make a day and time, we can go on it..that's what is said :)
Prayers always for all here. Be well I think this saying goes something like this...
"It's not What your given in life to Handel.......It's the Way you Handel it that counts"

[OZZY FANN]

[quote="livingwith"]Hello my name is Sam, I’m very new to all of this. I have lived with chronic pain most my life as that I’ve had numerous surgery and things. I recently had surgery to remove a tumor in my right ankle and scope it out. It was worse then the had thought and I will be dam if I didn’t get RSD. Not like I had enough to deal with in my life.
I am newly married have 3 teenage step-sons I think of my own, a handicap daughter and 3 new grand babies. I lived the run of the mill l[hc_livingwith=livingwith.neurologychannel.com|/rsd/20090106_7563||20090106_7563]READ[/hc_livingwith][/quote]
Hello Sam,
my name is Laurie and had RSD And CRPS for about three years now and it has spread to almost half more of my body than i had before. I know what your going thru my husband gets really cranky and most of the time has a hard time understanding the pain I'm always in however I have given him a boys night out and a daddy and daughter night out as well then I have the girls over for coffee or we watch a movie and things have gotten alot better in our house most of the time my friends come over and help me with the things i cant get to or find that I have a hard time doing it really helps Then every other Friday we go out for dinner without our daughter this condition can really tear up a family but dont let it I think its just really hard for a husband to see his wife in pain and they can't do anything about it. Please feel free to contact me at anytime to talk or vent or whatever I will try and help you thru this believe me I've lived it for almost 4 years now at stage three doesn't get any worse than what I have. God bless. Take care remember please dont let the RSD win it will ruin your marriage if you let it.
Laurie

[sammy157]

Hi Laurie,
I so feel for you, as I too understand what you are going through. You have come to the right place for support! It is so hard for our loved ones to understand what you are going through, if you do not suffer from RSD, you just don't get it. I know our loved ones try to understand, but it is so hard, for all they see is the pain you are in, and can not do anything to relieve it....which makes them frustrated!
I have had RSD since 1997, and it have traveled from my left foot, which it started, to now Bilateral. I am in the middle of trying to deal with my left knee, which I injured form a fall. it twice the size of my right, so my PM Dr. works closely with a Otho Dr. and here we go, MRI, Injection, and possible surgery. I am scared to death about this. My children try to understand, but it is so hard, as Mother should be there for them, not them for me. I feel the quilt!
I will be praying for you as I do for all here. Sounds like you and your family are trying to get a grip on this in a positive way. That is the key..try to keep your head up, and look to your maker for the strength to go forward. Keep your Faith High. I am here if you need to talk, rant or rave!! Sometimes we have to, just to get it out!
Hope you have a Low pain day..don't let this Monster get the better of you!
Many Prayers for you from me!,
Sammy157

[tazzwife]

Hi Laurie,

It's nice to meet you and hear your story. I hear you in letting them have their space. They are going for a boys day out. Which will be great for them. I really like to encourage them to to spend time away and have their space. Everyone needs space and time away to regroup. This kills everyone and their patience. I know I'm running low on patience myself. I have found out who my friends are through all of this. It's not all bad my mom is trying to get closer to me. I'm really hoping this wont tear up my family but I really don't know where I stand anymore. I would love to chat with you and get to know you. It's great to find friends that know what your going through.
Chat with you soon

Sam

[tazzwife]

Hi Sammy 157,

thanks you the nice thoughts.

Sam

[tazzwife]

Hi Sammy 157,
I have really enjoyed reading your blogs. I have gotten alot of support and good ideas here. I even been more upbeat since I vented. I am sick of the all doctors though. Every time we see one this is what I hear- "oh I have the best ideas to help you". I hear that one more time I'm going to hit someone. I'm going in for a lumber block Monday. I'm not looking forward to it. I'm wondering if all the pain I go through; to try to alleviate the pain. Is it worth it????? I'm not convinced the lumber blocks will work but hubby wants to try them. I had the nerve block in my leg. Those weren't to bad. They took the edge off. They tried Lyica but the side effects just aren't worth it to me. I would love to chat on rsd and you. I haven't gotten on there, but I will check it out.
I hope you all have a great night

Sam

[dar in pa]

Hi Sammy,
Just wanted to say hi. This will be short as I am in such a horrible pain cycle with my right leg that I could lose my mind. All I have done the last 2 days is cry and pray to God I would die to get out of this pain.

I'm sorry to hear of your problems and pain. I will keep you and all in my prayers. I can't really even think right now.

God Bless.

Darlene

[sammy157]

Hi Darlene,
I am so sorry you are having a bad day:( I Thank you so much for the effort of taking the time to drop me a line! Take care of your self first!! You are a sweetheart! I will be praying for your day to bring you some relief. It is so hard dealing with all this pain, as some days are worse then others. Just when you have "somewhat" of a low pain day, it always seems that the net one is Twice the pain level. If crying helps you, then you just go ahead and let it flow!! When you are feeling better, we will chat some more...Must be something in the air today, as My pain level is through the roof also.
Thank you for the prayers, and you know I will be sending mine up for you also! Hang in there as best you can..feel better!!
Sammy157

[sammy157]

Hi Tazzwife,
I so hear you about the Dr.'s!! I want to thank you for your nice words. If you have not had a Lumber block before, and this is you first one, are they doing a set of three?? For me they helped for a while. The only thing I would recommend is if they can put you under a bit. I feel the pain when they do them, and my Ins. co. does not pay for anesthesia, so I have footed the bill twice. I really didn't have the money to pay, but i managed somehow. I have had it with nothing, and I was not a happy camper.
I'm not trying to scare you, but only be real. I wish you luck on Monday, and Please let me know how it has worked for you.
Venting is so important, as I'm sure you know. You said you feel better since you have done so. Keep up the good work!! I sometimes want to rip my hair out also, from so many things!! The pain level today is so out of control. I have this knee problem, and I feel like "why me" (as we all feel). I know there might be surgery involved, and I just don't need that in my life right now. I have so many things going on, I can't keep up..my brain is overflowing!! Bone density coming up, MRI, Mamo..when does it end.
Sorry for all that, but I needed to get it out!!
Thank you for your response, as it is so nice to get replies. I am on rsdandyou, but still don't get it myself. I thing we have to make a time to meet in that chat room, as they say it is always open, but they have chat on Wed.'s..then I read Mon.'s then I read no chat due to an illness of one whom runs it?????????? I'm confused. I think if ya set a day and time with someone..that might work..well you let me know when you have had the time to visit the site and tell me your thoughts.
I will be praying for you for tomorrow..good luck. It DID work for Me..I hope it does the same for you!
Many Blessing to you, and my you find some pain relief. Please keep me informed..k..
Be Well,
Sammy157

[dar in pa]

Hi Sammy and Sam,

I don't know if I am behind on posts or not. If I have missed replying to anyone, I apologize. The last 4 days I have been so "sick" with pain that I did not know where to put myself. I had a Dr. appt. in Allentown on Friday and felt ready to die by the time we finally got home. Along, with all the pain goes the depression and all the crying, that I actually just kept praying to God to let me die and get me out of all of this pain. But, I am still here. I guess it is not time yet.

Today, Thank God, I am finally feeling abit better. I have an appt. with the PM Dr. next Monday. Can't wait to go and see what he has to say or do.

I hope everyone is doing ok and, not in too much pain.

Talk to all later.

God Bless All.

Darlene