Reflex Sympathetic Dystrophy (RSD)

[dar in pa]

Hi Sam,
I'm doing about the same as you---hanging in there and taking each day and whatever comes with it. Haven't found any drs. that can do much for me; have been round and round and you just kind of give up and live with it. All my damage is irreversible, so I just do the best I can.
It was good to hear from you; it has been along time.
Take care of yourself.
Darlene

[baduff]

Wow as the saying goes your preaching to the choir, I've had RSD since 05 and I was an active, energetic person, pain meds are not working for me either and I have it in my Left leg can not stand to have anyone touch me, I also had the Spinal cord stimulator (scs) that did not work, I have went through the so-called approved treatments, The first time I break anything it was a doozy. I am on different meds all the time but nothing works, now their talking about a pain pump, I'm leary! I am forgetful now and I never was before, I was told it is a combo of the pain and my functioning in my brain. I also have teen son and a 1 yr away teen, they help but my husband had to take the role of provider by himself he works very long hours then comes home and does things for me. Because of my spasms I can not drive and thanks to removing the SCS unit now I am experiencing loosing feeling in my right arm which I am scared it is RSD. Because of my meds my stomach it messed up but I read on this site about the 4 f's diet and I have been doing it a couple of days now, supposed it will help my system right itself and help control the pain and I am willing to try anything, it is had to give up my moutain dew but I cut down, I guess all in good time. Thanks for sharing your story and I reccomend looking into some of the fringe treatments they have had great success. I have to follow what BWC says until like my spouse says until his irish southern peach has enough and it is coming close. Good luck hon and keep talking, it has helped me bunches.
Barb