Reflex Sympathetic Dystrophy (RSD)

[livingwith]

Jess is 23yrs. old and has had RSD for 4 1/2 yrs. She had TMJ sx. in 2003 in both joints. Three months after her sx. a lady broadsided her and the air bag hit her in the joint and ruined her sx. Two months after that she was diagnosed with RSD She had to have her sx. over 2 yrs. later. She is in constant pain, her face and joints hurt, she gets no sleep, it hurts for her to talk and chew food. Over the last 4 yrs. she goes in for Stellate Ganglion Blocks and is on a lot of medications. Thank go...Read the full article

[perceypor]

I really do know what your daughter is going thru. I am into my 20th year with RSD/full body, and my main area of treatment right now is my TMJ/Trigeminal neuralgias (face)/occipital neurlagia/mastoid neuralgias on both sides of my face. It gets so bad that I cannot comb my hair, or even touch my face. There is no brushing of the teeth, no wearing earrings, no swallowing, definately no talking. Any movement of the face, or the slightest breeze causes hours/days of excruciating pain.

RSD causes TMJ and vice versa. Thank God your daughter's was caught early. I went 17 years undiagnosed. You can imagine what that was like. What works for me are nerve blocks, NOT GANGLOINS (they DO NOT WORK, matter of fact, they MAKE THINGS WORSE - if not given right away). I receive 10 - 15 nerve blocks every 4-6 weeks. The blocks and self injected pain meds, and oral/topical meds, helps me to keep my pain under control.

Please talk back. It's nice to know that someone can really relate. Other's try, but, if you are not going thru it, you cannot really understand.

God Bless
Sabrina