Reflex Sympathetic Dystrophy (RSD)

[livingwith]

I am writing to create an area for people affected by RSD to refer public officials or people that could be beneficial in helping to raise public awareness of this relentless disease to.
For anyone that is unaware of RSD also known as CRPS, and it’s toll it wages on the patients and their loved ones, please read some of the posts that have been entered on this great forum. For the most part the people here are the patients themselves, but all are directly affected.
The disease itself is...Read the full article

[thoracic]

Hi Im new to this form, I just want all of you to know i have RSD and i know how important it is to get this out to the public, and Doctors need to be educated on this pain full condition. I had Thoracic Out Let sugery,after that my pain was worse. I was so up set that the pain was and is to much to handle. I live in Syracuse NY, yesterday i got a email from chanell 3 news. They read my story, and i asked them to please due a story on RSD. They told me next wed 12noon live they are doing a segment on RSD. IT took a lot of emailing, but it was worth it. I just wanted you all to know. If you need to talk, im here, im 43 years old and have three boys and a husband. This is work related i know a lot about this condition. Thoracic

[thoracic]

I am writing to create an area for people affected by RSD to refer public officials or people that could be beneficial in helping to raise public awareness of this relentless disease to.
For anyone that is unaware of RSD also known as CRPS, and it’s toll it wages on the patients and their loved ones, please read some of the posts that have been entered on this great forum. For the most part the people here are the patients themselves, but all are directly affected.
The disease itself is[hc_livingwith=livingwith.neurologychannel.com|/rsd/20080305_4285||20080305_4285]READ[/hc_livingwith]
I have every problem that you have listed, it is unbareable. I feel your pain and i understand it. On the pain scale it is the highs pain level i think its 46 on the scale. that is why i was emailing to news channels, and finally they are going to put it on chanell 3 news at 12noon live, On Syracuse station, So im on the same page your on. Thoracic

[thoracic]

Not to many people on this site seems to reply to any thing, If you have RSD WAKE UP YOUR NOT GOING TO GET ANY WHERE, YOU NEED TO SPEAK UP. YOU THE PEOPLE, DO WHAT YOU NEED TO DO ,EMAIL THE NEWS IN YOUR STATE, WRITE TO YOUR LOCAL PAPER. AND RESPOND TO PEOPLE LOOKING FOR HELP. WAKE UP!!!! ,WORST SITE FOR RSD I EVER SAW.

[ShanGNich]

I was diagnosed in 1999 with RSD and have lived in pain ever since. I don't know what I can do to help promote public awareness but I saw your post about being in Syracuse and I live right outside Syracuse in Baldwinsville.

Shannon

[thoracic]

HI SHANNON,
I AM SO GLAD I JUST HAPPEN TO LOGIN AND SEE THAT YOU WERE LOOKING FOR ME. I LIVE IN BALDWINSVILLE TO. I KNOW ALOT ABOUT RSD AND DOCTORS YOU CAN SEE. I WILL KEEP CHECKING IN TO SEE IF YOUR ON. I WANT TO GIVE YOU MY EMAIL BUT I DONT KNOW IF WE CAN ON THIS SITE. CANT WAIT TO HERE FROM YOU. IM GOING TO GIVE IT TO YOU ANY WAY [moderator note: e-mail address has been removed]