Reflex Sympathetic Dystrophy (RSD)

[livingwith]

I would like to know if anyone has used a spinal cord stimulator and if it helped. I have had RSD for four years - it is now whole body RSD and the doctors now want to implant the stimulator after numerous failed blocks and too many drugs and too much pain. I will appreciate any help you can give me. I am sitting here with tears falling because I found a place where people have what I have. RSD is a lonely disease.
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[mshianmighty66]

After about a year of suffering with RSD, I was advised to see a pain specialist. He recommended that I have three spinal blocks, and if they helped then he would do a spinal cord stimulator. After the first spinal block, I had no relief whatsoever. We scheduled a second block within the next two weeks, again, no relief. The pain specialist wouldn't do a third, because there was no difference in my condition after the first two blocks. This much I do know, Jerry Lewis has a spinal cord stimulator, but then again, I don't have his doctors, so I never went to seek another cure for RSD. Its been two years now and I walk with a cane. I broke my ankle and I suffer with RSD from the knee down to the toes. I have a hard time wearing shoes and of course the weather plays a big part in what I can and cannot do. I live in PA where the weather is not very favorable for this condition. Cold and wet are my worst enemies. The hardest part is that people don't understand this desease or how it effects your way of life. I have resigned myself to this life style and pray everyday that it doesn't get worse then it is now.
If you want more information on spinal cord stimulators and Jerry Lewis, just google his name and read about his experiences with a SCS. I hope this helps some.

[Daniel S.]

With redard to RSD and having a spinal cord stimulator implated to reduce the pain, I would recommend the surgury. I had the device placed in my back in 2006 and it reduced the pain level from a narmal 7-8 daily pain level to a more controlled 3-4 level. Good luck - Daniel S.

[sharimm36]

Hi there my husband has been threw the trial run with the ans and it did wonders for him , he is sceduled for the permanent one on sept 17th for this and i have to say for almost 4yrs he could not touch his foot the water would bother it and we have hope this is difinetly the treatment for him with the trial even tho he had it in for a short period of time he was able to have the nurse touch his foot and finally walk on it with very to little pain .
Please fill free to email us at [moderator note: e-mail address has been removed[ and I can send you a phone number so you can talk to him personally about how it worked for him . There is hope with this
Shari