Reflex Sympathetic Dystrophy (RSD)

[livingwith]

I am feeling like I have read my story over and over again I have RSD it came about right after I had Knee Replacement surgery I am 45 years old and feel like I am about 80 years old I can not walk very well I can not wear a shoe on my left foot I am on many pain killers which take the edge off for jsut a short time I get real depressed about this as well and feel like I have no where to turn I wish I could talk to some of you who are suffering the same as I am someone that understands what my l...Read the full article

[tamlan]

My husband and I truely know how you feel. He had an accident 7 months ago by falling from a ladder. He broke his tibula and fibula they done surgery. Then we changed Doctors because it was to far for him to ride and was much to hard on him. After the third doctor finally thats when they said RSD and sent him to a pain clinic. He has had 12 sympathetic pain blocks and still has swelling and in pain. He has to use crutches to get around at all times. It has been very hard on him mentally he works construction and is not able to work at all. As you had said all the pain meds. do is take the edge off and he also can't wear shoes,boots or even a ankle sock.

[queenb13]

i know how u feel. i have had RSD for almost 10 yrs now. I have RSD in left leg from twisting it. It has changed my whole life. My hubby left after 6 yrs of dealing with it ,,,me in and out of hospital. they always want to try something new and nothing works. Also some of the meds they put me on have given me more troubles, like seizures.

But the good news is ...in the last 3 1/2 yrs.... I have gone to using all natural herbs and some meds too. Things r getting better and I even have a bit of a life. Herbs might not be the answer to everyones pain and depression but they sure the heck hepled me. My doctor (just me GP) is the only one i have left the others said they cant help anymore...they just dont know what to do for us RSD'ers. and she has seen how they have helped me and passed this info. on to other RSD patiants she has.

So my friend look into the herbs...like valarian root, scullcap and also the teas...they have helped me and maybe u too. If you get a lot of burning, u could try a combo of 1/2 cup coco butter and 2 teaspoons pure peppermint extract...mix and rub on...it will cool the burn and ease pain for awhile.

gental hugs to you

[VANDA]

my dear friend there is hope for what you are living beleave me.I went under 5 operations for my RSD, and after all I,m cured. It was knee operations and at during that time I thought that never again I will run and wear my shoes with hi hills. Now all is past. I run, dance, work, horse riding ect ect. if you want to contact me in this chanel, my name is MARIA, and I will be very glad to help you. HOPE AND LOVE.

[tamlan]

Maria, you said you had 5 operations for your RSD. My husbands Doctor told him he would not touch him until the RSD was under control because it would make it worse. So I guess my Question is did it make it worse at first? And why did they have to do 5 if you don't mind me asking? We are pretty new at this and some times I 'm not sure the Doctor know as much as he would like us to beleive.Rick { my husband} broke is foot back in Dec. and finally we found a Doctor that new why it was swelling, turning purple, ice cold ect. in may. So he sent him a pain clinic and he has went 14 times for shots in his back it did take away some of the swelling but that is all. He still is on crutches after all this time and in alot of pain, burning, and said it feels as if there is a plate in his foot and he has what feels like electic shock that goes his foot as well as feels like his toes are going to fall off. There are times that his foot gets the color of a plum.

[VANDA]

my dear frien, unfortunately tomorrow I fly to Estambul for 3 days , but dont worry because we keep in touch and I will help you as much as I can. Firts of all your doctor is right, you should not go under operation if you have RSD. You have to improve your self with magnetotherapy, 3 hours per day but the point is the GAUS and the Hercios wich are diferenets intensivity. I will find for you the intensivity when I arrive back from Estambul and I will tell you what to do. After that you should go to a place that have the machine for magnetotherapy and tell them to do what I will tell you with the intensivity. Also you have to do a lot of exercise to improve the blood circulation wich is afected with the RSD, and this will get the swelling away in a time. the mind is very importan and I will have to know more about your situation, marriage, family, work ect ect and if you have had some problems in the last year that could afect you. Beleave me this is very important¡ Also try not to think about your problem as if there is no cure....thats not truth¡ go to cinema, go to dance, even if it hurts..go shoping,and excuse me...make love..wy? because making love you put your endorphines at a hi level wich is very important for the RSD, because the endorphines dosent work like it has to do on us, and the endorphines are for pain. Are one of the pain killers of our body, and the body creates them natural. Well darling I have to sleep, because heare in Spain is too late. All my best wishes for you and your family and dont hesitate that theres cure....love MARIA

[VANDA]

my dear friend, theres cure for RSD, I have had 5 operation in my rigt leg the knee, very bad RSD, after a lot of things that I've done I was cured. Then after 2 years the dentits took out my wisdom teth and sundely another RSD arrive back.Nobody told me that once you have an RSD it stays with you forever...At this time was terrible the pain ..trigeminal pain the doctors have operating me for 4 times even in USA, and CANADA and after all I'm cured. Wy...? because I,ve never give up¡ Acupunturist, chinese medicine, magnetotherapy(very important) herbs a lot and vitamins..but the moust important thing.....YOUR MIND. Now I have to go because heare in Spain my country is late and tomorrow I have to fly to Estambul. I keep working on an airline, hard work and I,m very proud of my self. Don,t hesitate to ask me all what you want, my purpouse is to help people with the same situation as I have had to thaks GOD for my cure. Love MARIA

[VANDA]

Dear Tamlan unfortunatetlly i.working a lot right now and chainche home to another place but give me some days and i. will find the information for the Gaus- and Hercious for the magnetotherapy machine. Sorry for my faults in the language but I have forgot a lot. dont give -up...love Maria

[hot foot]

HI. It looks like you have had several responses to your post and I hope you have found the support and empathy you need. Everyone with RSD needs help from others who know exactly what you are going through. Don't give up; the terrible depression is part of the disease but you can be helped with the right doctor's and support. I hope you get the help you need and some relief from your pain. Sincerely, Terri stevens