Reflex Sympathetic Dystrophy (RSD)

[livingwith]

When I was 16 I was shot in the chest with an AK47 and was told I would be fine… SURE… if that wasn’t just the cruelest joke I had ever believed… my reconstructive surgeon was the only one that believed that I hurt every other doctor just looked at me like I was completely crazy... my reconstructive surgeon gave me a # to a doctor that he went to med school with which soon diagnosed me with RSD… Soon after being diagnosed I was given a bunch of medications that didn...Read the full article

[kiddoshaw]

Hi .... My name is Heather I dont have RSD but for the last two months I have been caring for a lady who was just recently diagnosed with it ! I cannot relate to your pain but however I can imagine what u are going through... I went to the doctor with my friend today and walked out in tears we are from NL, and the doctor she seen today new less about her disease then I do.... im scared for her, because I dont think she is asking the right questions or demanding answers.... she takes Methodone for her pain which really seems to help.... however her condition is worsening and I feel like she is giving up.... Leaving me feeling helpless as her caretaker and friend....... I found myself on this site and many more trying to learn as much about this as I possibly can.......... last night my friend fell from her walker to the floor and convulsed for several seconds I called an ambulance and we were sent home several hrs later with no answers....I dont know where to turn for help any suggestions ??? Tell me more about yourself you can e-mail me if you like anyone who feels they may be of help please e-mail me at [moderator note: e-mail address has been removed]
sincerely
Heather

[TriciaD]

Hi. My name is Tricia. I can totally cry right along with your story. NOONE understands. To hear people complain just makes me really really mad too. I have had RSD since 2002 going on 7 years. I have the RSD in my left leg/knee and foot/heal and toes. I tell my husband ALL the time that I wish the pain would just go away!!!!! Ya know what though it never does, always there morning/noon/and night. I slipped and fell at a gas station one morning and that started my NEW unfair life. I have had sooooooo many people tell me ya know you shouldn't be such a b_ _ _ h all the time and so depressed and miserable. But they just don't understand. I am on tons of pain medicine and depression medicine and stomach medicine. Have tried sooooooo many nerve blocks and pain meds and injections I just stopped counting. I just wanted you to know that I feel your pain. I DO understand what you are going through. I just recently had to start walking with a cane the day before my 34th birthday. That was a big let down for me. A 34 year old woman should not have to use a cane. Before I had the cane I was falling down ALOT because from the RSD my left knee gives out all the time without warning and down I go. SO doctor said enough of that and made me get the cane. My doctor in Saginaw Michigan wanted me to start using a cane about three years ago and I refused, glad I have it now though. If you would like to talk contact me. Remember I do feel your pain and I cry right along with you telling your story. You sound ALOT like me. Unfortunately I have had this for almost 7 years and it will NEVER get better. ..................you of coarse know that.

[stevensr]

Hey Tricia, I know how you feel. Just learned I have it in the same places as you. I know it will never get better. But You will just have to work it out for yourself as I plan to do. Find new hobbies to try and take your mind off it. Walk and exercise as much as you can. I've made my mind up I won't let it beat me. It's not going to stop unless you keep it moving, it will only get worse. And pray every day, miracles do happen! Steve