Reflex Sympathetic Dystrophy (RSD)

[Bussey]

Hello meglaser,

When I read that your hand was doing better, and you were typing with 10 fingers today, I was so happy for you!!!

A few days ago, I read about how the methane gas has been affecting your heart, and obviously, your blood pressure as well. Are these new symptoms that you're dealing with? Has your husband seen your paperwork from the doctors that confirm the conditions that you're suffering from? Perhaps, you should sit down with your husband, and explain to him, that it's important to be a united front for your children. I was really sorry to read about what he has been putting you through with your children. Those are really terrible accusations! Making these accusations to your children is unthinkable. Hopefully, the two of you will be able to work this out, in the best interests of both you and your children.

I was also glad to see that you are making the effort to live life, for the sake of your children, as well as for yourself. I believe your son was happy to see your face there. I'm hoping that you will be in a better mood soon. Hang in there please! You just have to keep fighting, no matter who the foe is!

Don't let anyone cause you to get down on yourself. You are sick right now, and you are only trying to get better!

You take care of yourself! Stay in touch.

Bussey

[puppyloverof2]

Hi Meg,

I had carpal tunnel release surgery May 21, 2009 on left hand, diagnosed with RSD in July, started with a pain manager in Sept. 2008, went to PT from July 2008 to May 2009. I had filed for Disability last April because I had been told the recovery time was 12- 18 months & that is the criteria for disability. I was denied in June 2008. I got an attorney and he appealed the decision. Attorney said it was a win-win situation and had a video hearing for disability Feb 2009. I just got an letter from the judge today with the decision "UNFAVORABLE". I am just shocked and sooo upset. I have 5 lb. lifting restriction. My doctors said I am unable to work. There is so much wrong information in the explanation and things I said were taken out of context. Because I "looked nice, dressed well, spoke well, was made up" was not a positive thing to do for court. Of course it was left out that it absolutely KILLED me to get showered and dressed etc. Every day I have to make a decision to shower of do the dishes, depending on how I feel, which one never knows. After months and months of excruciating pain and PT appts 3 x's a week, I was so depressed about not being able to do anything around the holidays, I decided to try to bake some cookies and I was so excited that I did it even though it took me about 1 1/2 hours, I told my PT. I really wanted to improve so badly but that worked against me. Because you cannot see RSD, people automatically label you as "drug-seeking". I was honest about everything with SS and my doctors and lawyers and that was a mistake. Came back to bite me in the ass. Honesty is NOT the best policy, I have found when you are trying to get disability. My RSD is spreading now and I am on heavy doses of Oxycontin, Percoset, Nortyptoline and Lorazepan so how am I supposed to work and drive being on these narcotics daily? So just be careful what you say, and what people write down that you are saying so as not to be taken out of context.

Good luck!
Terri