Reflex Sympathetic Dystrophy (RSD)

[Lily]

hello Jen, hope your feeling better today. this cold weather is killing me.can't wait for warmer weather. i really think we have alot in common. my husband don't help me much anymore either. he avoids any conversation about how i'm feeling or anything anymore. sometimes i think he resents me not being able to work anymore. i know its rough on him paying bills by his self but i would take care of him if it was him. i've applied for disability i've gotten turn down twice. thats so stressfull finally got lawyer i pray i get it this time.i understand they have people that fake illness but it really hurts when you need it for real. i've worked since i was 16 yrs old never ask for nothing then when you do they act like you've committed a crime. i don't no as much as i need to about rsd trying to learn from what others go through ,yes thank god for this website if not i wouldn't know anything. oh, i do have a myspace sight hopefully we can talk on there if you are on myspace. lorie

[dennyfan]

Lori, I cannot believe how much we have in common either. I actually started working when I was 8 for my grandparents at the family business. It was only about three months a year and was agricultural related so I was allowed to work. At 15 I also went to work for Burger King and then moved on to a hardware store. I have always worked. I don't know how not to. My last job was fast paced & very demanding & I freakin' loved it. I also made more money that I had at any other job and carried the insurance for my family. I don't know what will happen to me when my disabilty runs out. I have also been turned down for disabilty twice. Luckily the company I work for hires a company to help us fight for SSD. So at least I dont have to pay for an attorney. I feel bad and wonder too if my husband is upset because I am going to lose the best job I ever had. I don't have a myspace but have thought about it. Maybe I will think about it harder : ) so we can can chat more often & more privately. Hope you are having a good day. I am so glad to have met you.

[Lily]

hello, i was just checking to see how you are today, i hope a little better today. it really makes a difference when you can talk to someone who understands your pain besides changing the subject when you do try to talk about it. everyone needs someone. hope to keep in touch. gotta go for now.take care and remember you have friends here for you.lorie

[dennyfan]

Lorie, I wasn't doing to bad in the pain department this morning. It was great to have some relief. But then I did housework and now my pain level has increased. At least this week I took the time to do the house in two days instead of one. i am sure that helped. I dusted so it does smell really good in here. Which makes it worth it I guess. i am just waiting for the tech support guy to call & tell me he has the right parts to fix my laptop or I am going to be so upset. I will never buy another computer from Dell as long as I live. It has taken them a week to fix my laptop & I paid extra for the in home support. We bought my son the exact same computer for college & he just lost his hard drive & had to have it fixed over Christmas break. How is your day & how is your pain? I hope its great! Talk to you soon!
Denny

[winchestergirl]

Hi Denny and Lorie! Hope you are both relaxing, and pain free. Just a short check in. Had a bit of pain today, but was manageable. Please know that if either of you need a chat or to vent I will check in and listen and help get you through it. Be well!

Jenn :)

[dennyfan]

Jenn, I am so glad your pain was manageable today. Mine was too until late this evening and then it went down hill quick. I just really wanted you to know I appreciate you being there to listen. You must be a wonderful person. I hope your pain continues to be low. I will be thinking of you & Lorie & sending low pain wishes (and to anyone else who needs it too). Have a great weekend.

[Lily]

Hi,Denny i'm glad you are checking in today. you are a very wonderful person yourself,thinking about others. my pain is very high today due to very cold weather we're having. i have to try to make it to my son's basketball game tonight it's going to be in the teens.hope your having a very good weekend also.God Bless YOU, Lorie

[dennyfan]

Lorie, I am sorr y your pain level is high. I will be thinking of you & hope you can make it to your sons basketball game and enjoy it at least a little. My pain is high but probably not as bad as yours. I can keeping to 6-7 with my pain meds. I will talk to you more later.
Denny

[winchestergirl]

Hi Denny, and Lorie!

Sorry for the late check in. My Nana passed away on Tuesday and today was the day I needed to make her memorial collage and write her euology. The pain has been bad today, may be stress related as well as the cold weather. Lorie, I so hope you were healthy enough to go to the game. I know how hard it is to sit for long periods of time. And Denny, thank you for your kind words in your post. You and Lorie both seem like such lovely ladies, and I am so lucky I stumbled on the board and have had the opportunity to chat with both of you. It feels good to release the pain I am feeling, and have people actually understand. My well wishes for a lovely Sunday that is pain free and happy.

Jenn :)

[dennyfan]

I belong to another board thats also fantastic where I have met some wonderful women. I don't know if I can tell you the name of it on here or not or if I would be breaking the rules. I will try to find out so that I can get you both more support.