Reflex Sympathetic Dystrophy (RSD)

[dennyfan]

Lorie, You have got to be kidding! Please do not apoplogize to me about misspelling. If you knew how long it took for me to type msgs I dont know if you would laugh or cry. And I am no better than you for misspelled words. Besides this isnt english class the only thing your getting graded on around here is your friendship & compassion which by the way you excel at! You are an "A"! I hope you are doing okay today because I have the feeling with your post you are beating up on yourself a little. Hows your pain today? Take care & be nice to yourself your wonderful!
Denny
PS I dont know if this will work but the other group I belong to is at rsdandyou.com
I have met some of my best friends in the world there & have never seen there faces just talked on the phone \. You will love it!

[Lily]

Hi, Denny i guess your right, i've sort of been down today. it is good to know i'm not the only one who misspells word alot.thanks for the info about the friends youv'e met.i will go to that website and check it out. i'm trying to get some more info on rsd. i had to file for my disability and been turn down twice and had to get a lawyer. my neurologist and three other Dr.s have signed me off on total disability still got turn downed for degenertive disk diease and rsd. court is next. i pray i get it. it,s so hard on my husband paying all the bills with two kids. ssd said they realized i could never do any of my past work but that i was young and could use my hands.My Drs.said i had to be kidding them i can,t sit or stand long and can't even bend even to put on my shoes and have to walk with cane because i lose my balance and fall.not to forget the severe pain i have with rsd. i would like to see if anyone had this problem am in. and see how things turned out for them. talk to you soon,Lorie

[dennyfan]

Lorie, I wish I could help but I am in the same position you are with SSD. I have been turned down twice & my file is sitting on some administrative law judges desk. Where its been for Months!! I hate this. My RSD is in my right hand and are and I have CHronic Myofacial Pain too. My pain runs all the way up to my neck and I get referred pain in my left side and in my chest when its bad. Which its been for a couple months now. I am right handed. My doctors say I can sit no longer than an hour and stand for no more than two. And my weight lifting restrictions are ridiculous. I cant carry a gallon of milk according to my chart. I dont I carry stuff with my left arm and hand. Yesterday I had to go do some grocery shopping. As cold as it was it took me forever to get stuff in the house. Two bags at a time only in my left hand because I already hurt on my right and didnt want to make it worse. We pay for SSD and have worked for it. I dont know why they make it so unbearable of a process. I am sorry you will have to go to court but once you do I am sure you will get approved and you will get the back SSD & that will help you family. Low pain wishes Lorie!
Denny

[Lily]

Thanks Denny, i sure alot of people are in the same boat. i know they try to weed out people who are just lazy and don't wont to work, but like us we would give anything to be able to. everybody suffers for there lies. maybe we both will hear something soon i hope. it would take tons of weight off of my shoulders. Have you heard from Jenn or Christy? hope they are doing ok with all the stress the are under losing their love ones. talk to you soon. Have a good day.lorie

[dennyfan]

Lorie, I havent heard from Jenny or Christy. I am sure they are both busy with the funerals and things. I guess right now the best you & I can do is keep them in our prayers.
D

[okiebutterfly]

Hi my new friends! I posted on the general board about how things are going... Dont know why i did that.. Duhhhhhh....... lol I am back home in Oklahoma.... Feeling very overwhelmed... Between the pain and the greiving, I am having total flair ups... Thank you Lortab for letting me be able to sit at the computer.. lol

Christy

[dennyfan]

I am sorry you are in a flair up but I am glad you are home safe & sound. I hope your pain calms soon. Thats probably asking alot for all you have been through. But I can hope.
D

[Lily]

Hi Christy, glad you made it back home so you can try to get some rest. sorry about your loved one. Denny and i have been praying for you and Jenn. i hope your pain calms down alittle. your about like me having to depend on pain meds to help us through the day i pray for a miracle to get rid of this alfull pain. hope things get better soon for you.HI Denny hope your feeling ok today. hope you both have a blessed day.Lorie

[okiebutterfly]

I cant begin to tell you all how much it means to me to know that I am in your thoughts and prayers. You are all in mine too! I talked with my Dr today and we are going to do the block again on next Monday. I am soooo looking forward to it! I had three days of no pain from the last one. Never in my life did I think that I would be looking forward to getting a needle in my back. lol
I havent been able to rest since I have been home. Laundry and such... I am exhausted. I got three hours of sleep last night.. AGAIN.... Its going to catch up with me in a big way...I am stressed, in pain, and tired... Just want to take a long nap... Maybe this weekend... lol
Anyways, my eyes are litterally crossing now, so I will close... Hope everyone stays pain free or at least tollerable!

Hugs,

Christy

[dennyfan]

Christy, Just a quick note. Slow down if your in pain. The things you are doing will still be there later. Take a nap! You have had plenty of things on your plate. No reason to make it worse. And I hope you have many many days pain free from your block! Crossing my fingers.
D