Reflex Sympathetic Dystrophy (RSD)

[Lily]

Hi,Denny hope you are doing well today. just thought i would check on you today. Lorie

[dennyfan]

Lorie, My question is how are you? I am okay this moring but am dreading later. i am going to get my hair colored today and it always causes me to hurt so bad. Last time my hand swelled like a baloon and I hurt for three days. I wonder if its worth it. But I hate my hair not colored. Am I crazy? Tell me how you are? I don't know much other than that today. I have a busy week of appointments. Thats it. Write back when you can.
D

[Lily]

Denny i know how you feel going to get your hair done with the pain and all but if you are like me i have always tried to keep my appearence up and i'm always worried how i look. i dont know why i'm like that but every little thing bothers me. my husband tells my just because i can't do many things and stay home all the time don't mean i have to let myself go. like that help hearing that. i have alot of appointments next week in Chatannoga next week also .try to talk to you soon.try to take care of yourself.

[okiebutterfly]

I have a quick question.... I have RSD in my feet... The worst is in the left foot with an unhealing fracture.... I am still in the removable cast... If and when the time comes.... WHat kind of shoe will I be able to wear? Do they make special shoes for people that suffer from RSD?


Christy

[dennyfan]

I can't really help because I have RSD in my right hand and arm. Maybe someone who has RSD in the ssame area can help. I hope they can. Its hard enoughto deal with the disease without more of the unknowns. I have heard the longer you are immobilzied the more problems you can have. I hope you can get some info.
D

[Lily]

HI, Denny, CHRISTY AND JENN HOPE ALL OF YOU ARE DOING OK .JUST WANTED TO CHECK ON YOU GUYS . HOPE TO HERE FROM YOU ALL SOON.GOD BLESS YOU ALL! LORIE

[dennyfan]

Lorie, How are you? It has been quiet on the board this week. I hope the other's are okay. I have been busy. Doing what I don't know but not online a whole lot. Did you look at the other group I told you about? It really is a fantastic group of women who hold each other up and hold each others hand through the bad times and help celebrate the good. I met one of my best friends there. I dont know who I talked to so honestly about the way I felt before I met her. It really is an incredible place. Hope you have fun plans for the weekend. I am hoping just to stay home. Sometimes I just don't like going anywhere. I am thinking of you girlfriend (hehehe sorry silly streak today).
your friend,
D

[Lily]

Hi, Denny glad your doing ok. yes i've been looking over that web site.they seem like very good people. im planning on going to my son's baskestball game if all goes well. i hate to have to miss his game. he plays for upward basketball it was put together by a group of churches around the world. it really neat .it shows the kids everyone is a winner and they have prayer and learn different bible verses. we all need to teach our children about god it's a good thing. my husband is one of the coaches and he really loves those kids. they are so well mannered. oh,i've been viewing different post on here and they are some really great people who need to really talk to someone about their problems. i got upset after this person posted something reaching out for support and someone replied a post that really kicked them when they was down. that hurt so bad knowing this website is supposed to be for support and someone to talk to and a friend. well gotta go have a good weekend if you can and relax a little. later girlfriend. Lorie

[dennyfan]

Lorie, How horrible that that someone who needed help on this site was treated so poorly. People can be so cruel. I really wish you would jopin our group on the other site. There we have mentors and people actuallly call each other especially if they notice things seem bad. My mentor is one of the boards founders. She is wonderful and has called me when I was down and helped to bring me back up so I could handle another day. They really are an incredible group. The board as been quieter than normal as all are facing pain with winter. It can be a very lively place. On Thursdays we have live chat room and usually cover a topic and visit. I hope you made your sons basketball game. The program sounds interesting. I am not a churchgoer. I believe in God but I find organized religion to be a disappointment. To many people think they can sin all week and go get forgiven on Sunday. I prefer to try & live a decent life and will take my chances. I guess I am leaving the house today. My husband wants me to go with him running around. So I think I will go so I can spend time with him. I am not sure I want to stay in the house alone today. Hope you are doing okay.
D

[okiebutterfly]

Hey Guys! I had another block yesterday. This time he used Fenol. I know I miss spelled it. But your not going to believe this! I got up this morning and put back on the removable cast and stood up and had NO PAIN!!!! I couldnt believe it !!! PAIN FREE!! I cried I was so happy! I called my Dr to make my follow up appt and got to talk to him. He was thrilled but reminded me that I still have RSD. And that the med's are temporary. He said not to lift anything heavier than a coffee cup for a week and to take it easy. To not be up more than usual. THat the RSD is still there doing damage. To keep using the crutches and wheelchair. UGG.... But thats ok... I am so thankful right now, to have finally responded!!!

Painfree hugs to all of you!

Christy