Reflex Sympathetic Dystrophy (RSD)

[Raindancer10]

I want to thank each and everyone of you for being here. I feel so alone at times in this maze but when I read I know we all share something in common. I believe each of us do want to get better and have no desire to wallow in self pity. I see those moments of crying out for help and understanding. I am so appreciative of the information that you share, the insights that help me feel and know I am not going crazy. Today has not been great, in fact this whole week has been a rough one. Stress does escalate the pain. I am redy to embark on a tough journey in regards to the W/C aspect of all this. I want to see legislation for this syndrome. I want to see more awareness. We need to have better resources available and doctors specific to this syndrome to help us. We need healthcare workers to know what this is and how to have not sympathy but empathy as we try to maintain our independence and struggle to be pain free. And, has Truthseeker written proffessionals who have learned the art of understanding and listening.

[reruho]

Raindancer,

Thank you for your kind words. I think the words you used described what we have al felt at one time or another. There is a great loneliness in this disease that many do not and will never understand. I think this is reason many of us join forums to find others with that understanding and support but also to prevent some of the suffering that we have gone through.

I hope you have a better week next week, starting today. I will keep you in my prayers.

Reta

[Raindancer10]

Thank you hon that is kind. I think of the many names throughout the day and keep people in my thoughts and heart.I find if I project outside myself it helps. I know this is only temporary and it will subside. I just get weeks where this explodes and I go crazy. Then it goes away and I think it is gone and I'm going to be normal. I have hope.