Reflex Sympathetic Dystrophy (RSD)

[dennyfan]

I do not want to offend anyone but the other topic has gotten a little to "godly" for me and I am the one starting to get offeneded. So I am starting this topic so I have a place to talk to my friends where I hopefully won't be bombarded with God all the time. I hope we can build each other up and offer support here without always bringing God into the discussion.
Denny

[Lily]

Hello Denny,Hope you are feeling better after you visit to the pain clinic.How is the trail stimultor working so far.Please keep me in formed on how it's doing.I'm going next week for a consult for it and i don't know if i can handle that feeling or not.The neuro wants it in now so i guess i will have to go ahead.Well gotta go talk to ya soon.Love ya,Lorie

[dennyfan]

Lorie, I havent got the SCS trial yet. It will be in a couple weeks. Why do you think you wont be able to handle it? Do you have any hope that it will help you? I am hopeful that the trial will help but I am scared of it too. I heard it can be a painful process for the trial. You should at least go talk to someone about it maybe. It never hurts to get information. I will look at your pm's later. And answer them : )
love,
Denny

[Lily]

Denny,I don't know if i can tolerate the tingling feeling my doctor was talking about.I have to go to a psychiatric doctor first to get check out.It's mandatory before i can get it because my pain doc said some people can't handle the weird feeling.I think it might help me if i can tolerate that.My sister n law said you get use to it after it's in.i hope i do.Talk to ya later,Lorie

[G0J0G0]

Hey Lorie,
The tingling feeling is very pronounced, have you ever used a "tens unit"? the feeling is very much like this, it can be a bit annoying... g0j0g0

[Lily]

Hello GoJo,Hope you are feeling better.I have a tens unit now and it doesn't bother me at all.If that's the same feeling i can handle it.I couldn't get up and go if it wasn't for the unit it's great for my back.you hear so many bad things it scarey.I wish i didn't have to go for a mental check up first but if it's required i guess i have to.Hope you wife is doing well tell her i said hello and thanks for the info i feel better about it now and i'm sure Denny will feel more secure now she is fixing to get the trial.Have a good evening.Lorie

[G0J0G0]

Hi again Lorie and Denny,
'Sorry I missed that Denny, but the way I understand the SCS is feeling is more intense but very similar... Also I think you can control the intensity. Thank you I am feeling better, it has been one of those weeks, the sleep hrs. have been hard to come by on top of the discomfort, but such is life with RSD. Carla says hi to you all and she is doing well, she has to be to put up w/me LOL. You all have a great evening, g0j0g0

[Lily]

Hi GoJoGO, That's good to know i guess i'll go ahead with it i can't stand the pain i've been having lately.The meds are just not doing the job by itself.I will do about anything at this point if it helps.Have a great day,Lorie

[dennyfan]

Gojogo and Lorie, I heard the same thing about the stimulator compared to a tens, that the vibration could be more intense. It makes sense since its under your skin. I liked my tens as far as the way it felt it just didnt help. So that concerns me a little about the SCS trial not working. It will stink to go through all of that for it not to work and its my last hope according to the doc. Only thing left is a pump and I wont do that until I am maxed on meds. I have heard great things from so many people about the SCS that part of me is excited and hopeful. I hope that will wear off on you Lorie . Well better run for now.
Denny

[G0J0G0]

Hello all again
I tried the trial for the pump and didn't like it at all. It made my lower torso numb all of the time and created some insecurity in walking, like I needed any help stumbling lol. I was in line for the SCS trial when I had the radio frequency block. This was performed 2/28 and am still waiting on the results. Protocol states that the block takes 4-6 weeks to take affect... Still waiting. Hope this helps G0J0G0