Reflex Sympathetic Dystrophy (RSD)

[GMCGOTTY]

HELLO,MY WIFE AND I ARE NEW TO RSD,WE WERE WONDERING IF ANYONE KNOWS OF RSD CHAT ROOMS.THIS FORUM IS VERY HELPFUL BUT A REAL TIME CHAT WOULD BE A GREAT HELP. THANKS

[katelyn]

Hello I have been diagnosed with rsd by two doctors. The doctors look at you like they don't know what your talking about. I have been a nurse for twenty years and have been off work for three months. The pain doesn't go away it just naws at my right hand and arm all the time. I do PT 3x a week but the pain is terrible afterwards. My fingers are swollen and my three fingers middle to little when I close my hand they don't come up when I try to push them up it is very painful. I never new much about rsd until I saw the doctor write it down. I also thought that because all my test came back ok that I would be fine. I knew their was something wrong I kept telling the seven doctor and or specialist I have been to. I am being sent to a PM doctor in two days reccomendations are to get a total block and then off to extensive therapy has anyone had this done does it work. I fell at work I came away from a pt bed and my foot got caught in a bed alarm cord and I went flying across the room and landed on both wrist and knees. I was glad to have came upon this site I have enjoyed and learned alot from the stories. I would like to chat to someone with a simular story please feel free to contact me.Katlyn

[wonderdog]

There are several "real time" chat areas available for people with or supporting those with RSD. However, we can't post web addresses here. I would suggest you do a Google search for them...or be creative...try typing in RSD....chat....follow with org or com. I found one doing that and it is a good meeting place. Also, try adding support after RSD and that may help. Finally, there is a chat here, but I never really found it to be used much. At the end of the Health Communities toolbar, you will see chat. If you don't have the toolbar, it can be downloaded. Many times the only available people I have found are the moderators for this site and once a nurse from a doctor's office. She said she had been told to monitor by her doctor. I was not certain that she said who she said she was and therein there is a caution...be careful using chat! You can never be certain to whom you are talking. There are those who prety on the vulnerable! Good luck

[G0J0G0]

Hi Wonderdog and GMCGOTTY,
Ther is a chat forum on an info site called RSDandyou.com. I know the moderators don't usually allow the posting of other websites but this site is dedicated to RSDers and there care takers and I have seen the site remain in entries. Hopefully it will here as well for it is a great support site. I have found the support here much more genuine than other sites (present site excluded). As it is with this site there is a real concern for the patient and their/our well-being. All of the modertors have this monster ravaging their lives.
I hope this helps, for it has been a God-send to me, and I hope your pain is chased by the comfort you all need and deserve. g0j0g0

ps Wonderdog have you been feeling better, 'hope so, many prayers for you...

[rsder]

hello there,
how are you doing??? i'm new here because i wanted to let you know that there is a place to chat. the website is called rsdchat.org. please read my new post so you know what it's all about. thank you and here's a pain free h ug for you

[patty228]

i agree. i really could use a friend to chat with about rsd and someone to inspire me ,to not give up hope

[rsder]

hello,
i will be on rsdchat.org all day tomorrow. if you need someone to talk to i'll be there. it'll be good to talk to you.
take care

[G0J0G0]

Hi RSDer, Patty228, wonderdog, and all
There is a great site rsdandyou.com that is a support site that offers a chat as well as the opportunity to enter your thoughts on different threads of discussion such as this one. There is no hidden agenda, all of the moderators have RSD and they want to be of help in coping with this blasted monster that has invaded our lives. I have visited many and find this one of the best. They look forward to being of help in every way. I know this disease is tough at best and we all need an extra set of ears or shoulders and as you do here you will find that in abundance there. I pray that you all find peace and pain relief in your journey, blessings, g0j0g0

[cjscorky]

I think a chat room for RSD would be wonderful. I know Yahoo lets you start up chat groups. How many would like to check this out with me and we could be in alot better contact with one another. If the response is good, I would look into helping start a group. Anyone else interested?