Reflex Sympathetic Dystrophy (RSD)

[fireball]

Hi, can you tell me a little abut your exyema and if yur doctors state it is related to rsd. I have it 4 of my docs say its from rsd -their quack says its from celulitus. i actually got the cellulitus from an infection entering the leg ulcers(that itch) let me know

cheers!!!!!!!!!!!!

me!!!!!!!!!!!!!!!!!!!

[dar in pa]

Hi,
I just read your post and had to respond. I was at the drs. today for eczema. From what I have read, this is part of the RSD. I know it causes skin rashes.,therefore, am thinking this is what I have. He gave me a prescription for a salve to put on twice a day. I would check with your dr. I have been itching for a few days now and had to get a prescription; I was ready to rip my skin right off. I have been finding that so many of my problems are related to the RSD. Who would have known? I told my dr. today that if I didn't live this, I would never believe it.

Good luck to you.

dar in pa

[fireball]

dar n pa,

thanks for the response--i have only run into one other person who has ulcers on their limbs(legs) my legs itch so bad i want to itch the skin right off but then again it will turn to blister and the skin kitself will peel off--thats how i got cellulitus--just one more thiung this rsd does to me. my trial for w/c is next month instead of just getting my ttd benefits back i woukld rather just have this whole thing settled. but i will not settle for anything less that il law gives me and i will fight to the end. be real careful of the exyema(cant spell) when the infection entered one of the open sore it caused septic celllitus--put me in a coma for 15 days. family was told i had a 50-50 chance to survive. i remember going to sleep one day. one month later i recall being moved from icu but tbhat was it. with rsd snf no immune system everhytbhing can kill us

thake care

cheers!!!!!!!!!!

me!!!!!!!!!!!!!!!

[dar in pa]

Hi,
Thanks for your reply. I hope you are ok today. That must have been frightening with the celluitis. I worry about getting ulcers, as I have seen pictures of people with RSD who have them. I cannot believe all the problems I have that are related to this HORRIBLE RSD. No one can believe what it does to your life. I would give anything to have my old life back. This is a terrible way to live.

Good luck with your WC trial. I did not have to go through that mess, as mine was not job related. I did, however, have to wait 2 years to get a hearing to receive my SSD. What a nightmare these last few years have been.

Feel free to "talk" to me anytime you need. I know just writing and listening to others helps so much. Getting on this forum has literally saved my life; as I, like others, get very depressed. Family and friends cannot understand, because they have no idea what we are living with.

Take care. Cheers to you also.

dar in pa

[ttuck]

Hey Fireball,

The exyema I suffer from exist in small dry patches that are incredibly itchy. They locate themselves predominately on the areas affected but spread to other areas of the body. I feel like my entire body is "crawling" at times. The Dr has prescribed a steroidal based salve applied BID.
They seem to worsen as my periods of anxiety increase in intensity, and have responded in kind to the different meds they tested within treatments. Hence the Chlonazipam.
The salve does work but extended use of the steroid poises a threat to further skin irritation and damage. I am presently seeking out a homepathic treatment and have found that taking a good multivitamin containing Ginko does alleviate some of the symptoms. I have yet to discover an alternative topical treatment.
Good Luck and God Bless

[G0J0G0]

Hi all,
I don't know how long you all have been in this fight, but the symptoms vary as time progress' I have not had as many skin poblems, but am having a really tough time controlling the topical pain. I have also had several bouts with deep seated tissue pain in the affected limb, the left leg. This is almost impossible to control. Prayers for relief and this soon...

Fireball, be sure to hold the W/C people to all you can, as the addjusters are paid to keep the pay out as low as possible. If you're not happy with their offering, contact a lawyer and seek some leagal acvice. Try and hold out for medical care as this is a live long illness, that is not going away any time soon. You may happy to know that SSD recognizes this illness as having precedence which means that this will be approved. I recommend you contacting your local SS office and asking them for assistance, I followed this path and was awarded SS bebefits in a couple of months. blessings...

Dar in Pa, be most careful in scratching the lesions that appear, as the finger nails are some of the most germ laden parts of ones body. My son's dermatologist informed us that the nails can and often re-infect an area that is practically well, so again be careful...

HI TTuck, It is good to see you online, it has been a while, how are you and are enjoying any success in controlling the dragon? Drop me a line, keep in touch and keep the faith, blessings all, gojogo...

[ttuck]

Hey folks:
Good to see you Gojogo. Still fighting the good fight.
I have an appointment with my Pain Specialist today, gotta see if there is a better pain reliever available other than Tramacet for me. Meanwhile, its probably another round of radio wave injections and nerve blocks. Believe it or not I have to have the prescription for the excyema topical lotion renewed by him because WCB is refusing to pay for it.
For Topical pain relief I've always found Biofreeze the best, its all natural and does the trick perfectly.
Sorry for the quick note, but I'm kinda rushed today. May God Bless you all and have a pain free day.
Tim

[G0J0G0]

Hi TTuck,
'Tis good to talk with you, as it has been a while. I am still fighting the fight, and at times it seems that the dragon is the agressor, and is winning.
How do they administer the radio wave injections, and are they effective? I had a radio frequency ablation in Feb, 2008 and this set me back years in treatment. The pain increased as did the intensity of the flare ups. All of this making the pain much more difficult to control. I certainly pray that you are having more success than this.
Oh well, have a great day and here is prayin for many blessing your way, gojogo...

[dar in pa]

Hi,

Thanks for the info--it makes so much sense. I have probably kept things aggravated by scratching. I am "rash free" at the moment--Thank God. That itching can be as bad as the pain.

I wish you and all a Blessed Day.

Darlene

[fireball]

thanks everyone for all the advice--I think we help each other more than the docs!!

I ended up going to the infectious disease doctor today. He has the worst bedside manner is rude and really makes you feel like u don't want to be there. My husband says the only way he tolerates him is that he owes him all the credit for saving my life when i went into the septic coma due to cellulirus.
the leg today was open spracticaly from the knee down seeping fluid. He believes any infection is already gone-- know what is the best way to get these to heal. He is only here on wednesday so he wasnt around to see the active infection. he doesnt even know for sure what the infection is. Being that my leg was totaly dark purple today and all the issues ive had with it from rsd the infection could be from some skin capliatories(cant spell) due to the skin damage. Im already on two antibotic but he said the infection I had will not react to antibiotics, and he does not see how it would effect whether or not the neruologist-pain specialist would have to remove the scs. so--ireally got no help from him--just when the infection starts next time get in asap so he can asses it then---he doesnt get the fact that he only comes into town every wednesday. he is recommending thayt i be sent to the wound clinic to get help with the healing. some areas are rather large and this is going into 3 weeks with this eposode. so much for the one asset i had going for me--my legs--they now look like an albino leporadise's legs.
for those of you who have skin pain or tissue right below the skin is damaged or hurts--i do put on a pain cream that doesn't give a name of the cream just the ingredients--the perscription name is KETO 20% GABA 10% BUPI 1% and manufactored at a pharmacy called Alwan Pharmacy 309-676-6333. My neuro and pain specialist recommended it when it first came out--I also take morphine for that pain and the burning---the morphine actually blocks some sort of nerons(?) from sending the pain messages to the brain. I'm trying to get off as much of pain meds i can with the scs but the morphine and this cream really do work.
tonite's a bummer--i finally could type for awhile and was looking forward to the chat on here but i couldn't figure out how or if i could get on. I needed a uplift--maybe I'll try and find a site where I can get on a chat
Good nite to all
hoping tomorrow brings you sunshine

cheers!!!!!!!!!!!!!

flyaway!!!!!!!!!!!!!!!!