3 posts • Page 1 of 1
waiting to see neurologist for my 7 yr. oldHello
This is my first post here,I never could of imagined this would be a board I would be posting on and looking for support. My 7 year old daughter had a seizure this past thursday,this is the 3rd "drop out" episode she has had in a year(its been a year since the first two about a week apart) We were hoping those two episodes were just something that happend and that would be that. Her MRI and EEG at that time were normal. Her aura is now very easy for her and us to recognize,strong onset of a headache,double,blurred or black out vision and the she is out cold with her eyes open her skin pale and her arm shakes a little,all have lasted about 20-30 seconds and this past time she also got sick to her stomach and then the head pain followed. And about a week before that she had the aura but she didnt lose consiousness. Anyway,the pediatrician would like us to see a neurologist,we will be seeing him on Nov.2,I'm just feeling anxious and looking for support of anyone else going through something similar with a schoolager. Thanks.
Re: waiting to see neurologist for my 7 yr. oldI hope your appointment in November went well. Although I do not have a schoolager - my 16 month daughter has been having seizures since she was 3 months old - complex partial and another type the docs can't name - and I am sure we are feeling the same anxiety and frustration.
There is still no known cause for her seizures and we have not found the correct med. For a while there she was having cluster seizures and only on Sundays and Wednesdays, the doctors thought we were jumpy parents until we sent them a film of an episode. Now they think these are the seizures but can't name the type. Just remember they will not give you any answers right away, it took us a year to have them say that they may never know why she is having them. Keep persisting with all the appointments, don't be afraid to be pushy, start recording in a calendar when you daughter is having an episode and grab a camera and film an episode if the docs aren't listening or believing you. If the meds aren't working make them try something different, sometimes diet changes help. With our daughter we have her on zantac to control acid reflux and since then she has not had an un-nameable episode since then (knock on wood).
Re: waiting to see neurologist for my 7 yr. oldHi
We have 8m old baby. She had 3 strong epizodes so far and nobody knows the reason. MRI, etc - all normal.. What made you to try zantax? she was breast fed up to last month - we started eggs and apple,etc thinking it might help.. please let us know any details that might help.. Thanks
3 posts • Page 1 of 1
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