Sleep Disorders

[fwlady]

I would like to find someone who may have some insight on what my 9 mo old son has been doing. He has been tested for many things, even double tests on his heart and lungs. The last thing to redo, is a sleep study for apnea, because he seems to have disordered breathing, some apnea, mostly desats when he sleeps. When monitoring him, he desats into the 70s-80s but bounces back. The night after recovering from fever, which he seems to get monthly thanks to siblings sharing viruses, he will desat into the 60s 1-2 times that night, into the 70s a couple times too. This last time, we knew that he would have issues the night after having the fever, but we never anticipated it would be this bad.

We didn't have time to hook him up to the monitors, and he fell asleep, or he was not feeling well and put his head down on my son's shoulder. He cried out, just like he does before desatting, and put his head back down. My son hands him to me, and he looked at me and rolled his eyes back in his head, looked to the right for a while, and rolled his eyes again. I couldn't tell if he was breathing. He then went back to normal sleep. I realized the next day that he must have had a seizure. His apnea monitor never went off that night though. My doc confirmed that it was a hypoxic seizure and reassured me that his monitor would go off and hook it up when he acts tired. And, our sleep lab consult is in 2 very long weeks.

I talked to his pulmo ped nurse, and the Apria lady, and they neither can be sure the monitor would go off if he has more short ones. It would if it was longer, but we would like to know before that. I was told to call 911 if he doesn't come to in 5 min. Yikes. We live in the country, so I will be calling sooner and hoping he is fine by the time they get there.

Is there anyone that would know why a baby would do these things progressively with viruses and fevers? Is this just worsened apnea if he does have apnea? Is it unrelated or related, is my question, I guess. And, when should I be worried, as far as behavior the next day. Because this time, he acted quite normal by morning, although he had had a 3 hour crying spell, where he wanted me to keep him upright to sleep that whole time. And, his limbs were cold, when it wasn't cold in the house. Kymberli