Essential Tremor

[jmar]

My doctor has put me on CLONAZEPAM for my ET starting out at a really low dooze, and working my way up. Question I have is has anyone been on this? As I look up side effects and they look pretty bad.
I go to the VA here in Seattle & they want to do the Deep Brain Surgery and I am scared of it too.

[macacoza]

HAve not been put on that one..I still do the Primdone and Propranol. How long have you had ET?

[jmar]

About 20+ years. I love to fish, but can't tie on hooks etc very fustrating

[lilred]

jmar,
There is a lot of discussion going on in another discussion forum about DBS. The most that is written is by a man named Hugh. The site is wemove.org

Hope it helps.

lilred (Helen)

[macacoza]

I understand that..i no longer can sew..play piano..or sing...BUT...I can still do so many thing that I love...not singing has been the hardest to accept...GBU!
hugggggggs
deb

[diane sea]

jmar,
Go over the the wemove.org site. Lots of info from fellow shakers. YOU CAN ALSO SEND PRIVATE MESSAGES TO OTHER PEOPLE, IF YOU HAVE OR NEED A SPECIFIC ANSWER TO THEIR POST. DBS is a huge step. Do lots of investigation. Best of luck, and see you over at wemove.org. I am currently just on Atenolol, not alot of relief from it.