Reflex Sympathetic Dystrophy (RSD)

[livingwith]

My name’s Ailsa, and I’m 17. I’ve sunk really low and need to feel helpful once again, so I hope that my story can inspire others and give people hope, the way those around me have done.
In April 15th, 2005 I had a freak seizure at the school bus stop, and fell. A simple fall. That resulted in me developing CRPS (also known as RSD), in my right ankle. I went through 3 months of not being able to even touch my foot before any doctors diagnosed me. Four years down the track, not...Read the full article

[dar in pa]

Hi,
I read your story and am so sorry that you are dealing with so many problems at such a young age. I am 51 and, at times, cannot deal with my problems. I have had RSD problems for over 20 years.
My RSD has taken over my lower extremities. My legs are shot, I went from one cane to two and now to a walker. I know a wheelchair will be next but I keep on pushing for as long as I can. I do not want to think about the road ahead of me. I try to take each day as it comes, but we all know that can be very hard to do when you are in so much pain and cannot see a light at the end of the tunnel.
There are good days and bad; I pray for strength every day to get me through.
I wish you the best and hope you can find out what is wrong with your vision. I certainly hope that it is not too serious.
Try to keep strong. I know how hard it is for people to understand how much pain we are in and how bad we feel. It took some of my very own family members a long time to understand. Hang in there, you will find out who your true friends are.
Darlene

[christine1003]

you are beautiful, smart and beond your years, living with this is terrible i cried for 3 hours last night and dont know why, i am a strong woman and i never cry, keep your head up and keep fighting, have you discussed a neurostimulator with your doctor? I just did the trial and it was great for me, i am having one installed mid july
you take care of yourself and you brought a tear to me eye be strong!