Myasthenia Gravis

[livingwith]

I think the first signs of mg was extreme weakness and sleepiness. I was pregnant with my forth child and about a month away from giving birth. Everyone who knew me started to notice a change in my appearance,especially in my face. I did not see it at the time. I rule it out as pregnancy was just making me fatigue. I did have somewhat of a change in my ability to do daily task. I notice going up stairs my legs would feel like they were going to give out on me. I couldn’t use a knife for cu...Read the full article

[liddyann]

My goodness...5 children?? I'm tired just thinking about it. I'm kidding, I envy the fact that you have 5 reasons to get up in the morning. Along with the things you've listed as musts for staying well, I also believe in having a positive attitude. I have to admit it's hard some days when my body isn't listening!! I pray alot for others, but I've also learned through mg that it's ok to pray for myself and ask God for strength to get through the next day.

I really enjoy getting on this forum and reading everyone's stories and thoughts. It has been good for me to "talk" to people who understand and are frustrated, too. Even though we are at different stages, we are helping one another. We are all so very different, but share one thing. I wish drs could figure out the cause, so we could find a cure...until then, we will stay connected through this forum.

[marie_c]

Thank you for your post. My daughter is trying to learn how to live with Myasthenia after recently being diagnosed. She is 15 and we have taken numerous trip to the ER and several lengthy hospital stays. She eats healthy and tries to follow all your "rules of thumb" but its so hard to live stress free as student that is college bound. I'm so afraid what lies ahead for her. She is very positive considering in the last year they have taken everything that was important to her away. They have made her quit all sports and at this time she can't even participate in P.E at school. She sometimes breaks down and cries she just wants to be normal. Last week she was rushed to the ER because of going into a breathing crisis after walking to school. I just wish I knew how to help her.